wheelchair

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

21 February 2021

I’m not a freak show!

Look. I know I’m ‘different’. Isn’t everybody? I’m sure not many people aspire to be disabled, even though, over the years – I have come to be proud to be so. Prouder and happier still to have ‘achieved’ membership of an amazingly resilient and supportive community. Not biased at all, but https://shift.ms is my fave place to hang, of course. I shout out for multiple sclerosis peeps, for everyone disabled, and have even spread my wobbly wings to talking up all things diversity. Neither am I a shrinking violet about it. As far as wheelchairs can be sexy, I have a funky, eye-catching https://trekinetic.com/ one. It’s racing red and can do about four miles an hour. I like to think of it […]

18 April 2020

A man lies sprawled in the shade. He is lying across a sofa, asleep. He is wearing pyjamas, with his T-shirt riding up to reveal a less than glamorous belly. He has a dodgy Mohican haircut.

Covid-19 ain’t no flu. My Coronavirus and my Multiple Sclerosis

Yikes! Well that’s been a fun two weeks or so. Not. Lockdown all started out ok. The sun was out and I was set on getting just a bit fitter. This brief video of me exercising is not speeded up. At all. No sir-eee https://youtu.be/lKE6OAxR9HI Then, just as the U.K. was approaching peak cases and hospitals were heroically, desperately bursting at the seams, I developed the main symptoms of Covid-19. A constant, exhausting and painful dry cough. A fever. In my case, a sore throat and a touch of nausea too. And anxiety through the roof. A doctor call-back confirmed I probably had it, as did a dashed paramedic visit to our son, who also had Covid-19, but with an […]

20 February 2020

What has Disability Ever Done For me?

That was a poorly timed Monty Python joke of a title if you weren’t sure… RIP the spamtastic Terry Jones. And he’s not even in this picture. Oops. I so wish I wasn’t disabled. I wish to the depth of my spasms I didn’t have Multiple Sclerosis. It hurts on so many levels, it’s relentless and it is utterly, mind-bogglingly exhausting. But do I wish life were different? Nope. I am delightedly, delightfully, deliciously, dottily married. We have two stupendous children. A lovely extended family. I am knicker-droppingly‌ gorgeous. Obviously. If balding, ageing and sometimes smelly. What more could I want? (Crème brûlée more often possibly, if I am being picky?). I was prompted to think this through […]

3 December 2019

Is Blogger’s Block a thing? It is now. Thanks, messed up brain…

So, legions of adoring fans, I haven’t written for a while. ‘Lesions’ of adoring fans, if you know your MS stuff and like a bad pun. The complaints at my deafening silence have been flooding in. Not really. Am not sure anyone has noticed. Hey ho! I have lots of draft blogs which are nearly there, honest… Writing and thinking is therapy anyway, and probably stimulation for my foggy brain. ‘Cos that’s what it is. Foggy. Cloudy. Hazy. As if I were simultaneously a brain forecaster for Mark Webb and for UK weather. I can confidently predict more mist and storms to come. With rare but glorious clear spells. Look at me sat in a wheelchair and you guess, correctly, […]