ms awareness

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
23 March 2020

I’m stockpiling too! Just on anxiety, not bog-roll and pasta…

It’s a bizarre time to be alive, is it not? I do wonder how everything since the ‘credit crunch’ will be written up by future historians. They’ll be looking back from their floating homes and edible sofas, wondering what the bloody hell we were up to. I dunno. But I know it won’t be the ‘era of empathy’. Despite countless moments of courage and kindness these last days. Hoarding and ‘last nights out’ all squidged together seem to be way too fashionable. Right now I sit tapping from my wheelchair, knowing I am classed as ‘vulnerable’ to Covid-19. And wondering if that means I will be looked after. Or discarded? As the Coronavirus tragedy started to emerge, I could have […]
20 February 2020

What has Disability Ever Done For me?

    That was a poorly timed Monty Python joke of a title if you weren’t sure… RIP the spamtastic Terry Jones. And he’s not even in this picture. Oops. I so wish I wasn’t disabled. I wish to the depth of my spasms I didn’t have Multiple Sclerosis. It hurts on so many levels, it’s relentless and it is utterly, mind-bogglingly exhausting. But do I wish life were different? Nope. I am delightedly, delightfully, deliciously, dottily married. We have two stupendous children. A lovely extended family. I am knicker-droppingly‌ gorgeous. Obviously. If balding, ageing and sometimes smelly. What more could I want? (Crème brûlée more often possibly, if I am being picky?). I was prompted to think this through […]