Motor Neurone Disease

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
19 May 2017

“Freedom!” (shouted in a manly but appalling Scottish accent)

I was free of Multiple Sclerosis last weekend. For a whole two minutes. Milton Keynes was the unlikely spot for my brief whoosh of whooshiness. And Xscape the appropriately named building where, just for a fleeting while, I was as absent of MS as I’m likely to be for a while. It was emotionally and physically exhausting, but I’m still on a mini-high… That’s me, the deliriously happy chap in blue. And to the right of me in red the very patient expert trainer holding on to me for dear life and controlling my rather wayward limbs. Below me a huge fan blowing 110 miles per hour air right at us. Around and above us a wind tunnel. Without expert […]
9 February 2017

Matt Dawson, me and Motor Neurone Disease

Matt Dawson (ex-England Rugby Union captain, British and Irish Lions star, sparkly Strictly Come Dancer, long running captain on TV’s Question of Sport, rugby pundit and commentator and probably ‘much, much more’…). Met him this week at the #PowerPartTime ’17 event, celebrating people who manage to hold down a senior job ‘despite’ working part-time. He was on the list for 2017, I was class of ’16. Nice chap. He didn’t know me from Adam as I trundled up in a wheelchair, but he was polite and smiley enough to indulge me. But I knew him, and not just from the telly. I fixed him with a steely eye (not really), and told him we were from arch rugby rival schools. […]