Invisible

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
3 December 2019
MS brain with lesions

Is Blogger’s Block a thing? It is now. Thanks, messed up brain…

So, legions of adoring fans, I haven’t written for a while. ‘Lesions’ of adoring fans, if you know your MS stuff and like a bad pun. The complaints at my deafening silence have been flooding in. Not really. Am not sure anyone has noticed. Hey ho! I have lots of draft blogs which are nearly there, honest… Writing and thinking is therapy anyway, and probably stimulation for my foggy brain. ‘Cos that’s what it is. Foggy. Cloudy. Hazy. As if I were simultaneously a brain forecaster for Mark Webb and for UK weather. I can confidently predict more mist and storms to come. With rare but glorious clear spells. Look at me sat in a wheelchair and you guess, correctly, […]
4 June 2019
Invisible disability?

I’m in a wheelchair and I have an invisible disability

“Carpe Diem!” they shout, “Seize the Day!” “Yay,” we agree, “We’ll definitely make every day count!” A Grand Day Out. Or not. Except Multiple Sclerosis doesn’t quite let us work like that. It toys with us like a deranged cat with a weary mouse. We make thrilling plans – or even teensy plans – for tomorrow. We make resolutions. We have dreams and come up with crazy ideas. “This time it’s really gonna work,” we think, “I can’t let people down again.” And then, randomly, just as something starts to pan out and the coast looks clear, MS sidles up with a sly grin. “Sorry chum,” it smirks, “You’re staying in bed today. You’ve probably got enough energy for a […]