Invisible Disability Week

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
12 June 2019

Volunteers to the South-West sir. Thousands of them!

OK, so my recent post missed Invisible Disability Awareness Week by a month. And this one is missing Volunteers Week by a few days. Fortunately I have the catch-all excuse, “I have Multiple Sclerosis”. It’s brilliant, I can blame anything on it. From dropped cups, forgotten names, through jumbled words, random spasms, people rammed with my funky wheelchair to nodding off and snoring, it’s MS… Oh golly, we’re so lucky… Fundraising I don’t know how long this blog is going to be, because all I really want to say is a huge thank you to volunteers everywhere! In August, twelve amazing, hardy souls are swimming from Portsmouth to the Isle of Wight to raise money for two wonderful charities,  https://shift.ms/ […]
4 June 2019
Invisible disability?

I’m in a wheelchair and I have an invisible disabilty

“Carpe Diem!” they shout, “Seize the Day!” “Yay,” we agree, “We’ll definitely make every day count!” A Grand Day Out. Or not. Except Multiple Sclerosis doesn’t quite let us work like that. It toys with us like a deranged cat with a weary mouse. We make thrilling plans – or even teensy plans – for tomorrow. We make resolutions. We have dreams and come up with crazy ideas. “This time it’s really gonna work,” we think, “I can’t let people down again.” And then, randomly, just as something starts to pan out and the coast looks clear, MS sidles up with a sly grin. “Sorry chum,” it smirks, “You’re staying in bed today. You’ve probably got enough energy for a […]