disability

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
23 June 2021
On a purple background, a smartphone features. An image of a male in rugby gear is sitting in his Wheelchair Rugby chair holding a to the left of the scree

Disability@TheTable: The Podcast You Never Knew You Wanted

[A guest blog I wrote for the PRCA https://prca.org.uk  , our worldwide PR body. Click here to skip past my nonsense and listen to the podcast:  https://www.prca.org.uk/Disability-at-the-Table.]   What do we want? Real change in Diversity! When do we want it? Now! Yeah, right. More work to be done. Launch day is upon us. Finally I can proudly confirm I’m helping lead the charge – or in my case the slow, creaky wheelchair roll – with the PRCA’s shiny new ‘Equity & Inclusion Advisory Council.’ (EIAC). I’m the lead in the Disability workstream. As such, I’ll be pushing hard for disability to figure in every Diversity & Inclusion conversation. We’re not there yet, despite our community being comfortably the largest […]
21 February 2021

I’m not a freak show!

Look. I know I’m ‘different’. Isn’t everybody? I’m sure not many people aspire to be disabled, even though, over the years – I have come to be proud to be so. Prouder and happier still to have ‘achieved’ membership of an amazingly resilient and supportive community.  Not biased at all, but  https://shift.ms  is my fave place to hang, of course. I shout out for multiple sclerosis peeps, for everyone disabled, and have even spread my wobbly wings to talking up all things diversity. Neither am I a shrinking violet about it. As far as wheelchairs can be sexy, I have a funky, eye-catching  https://trekinetic.com/  one. It’s racing red and can do about four miles an hour. I like to think of it […]
27 October 2020

“You’re so inspiring!”

There are plenty of despairing ‘Things not to say to a disabled person’ lists if you google them. A couple of lead contenders appearing on the majority of these: – ‘You look so well!’ Actually, we know we don’t by ‘normal’ standards, but I have some sympathy with this. It is meant in good faith, and to me at least as a Brit, not unlike talking about the weather. Might rain later. – ‘Yeah, I know how you feel’. ‘Yeah, I get tired too’. These ones are tough to respond to. No, you don’t. You may, at times get the briefest of glimpses and insights into snippets of our life. But you are likely to see light at the end […]
30 June 2020

The Gazillion Stages of Grief. Covid, MS and Bloody Everything!

It’s tough out there right now. As I write this, and in the U.K. alone, perhaps 50,000 family and friends, (more or less 20,000, because we’re in both a guessing game and watching political football), are mourning a loved one. Gone to a virus none of us had heard of just a few distant months ago. In that same brief, surreal period, others have lost equally loved ones to something else. Accidents, scary illnesses, and old age? Well, they trample on, regardless of what makes the headlines. And very few of us dealing with the mounting waves of shock, bewilderment and fear have been allowed to manage the grief process. No proper funerals with cucumber sandwiches and sherry. No final, […]