Cog Fog
I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...
6 September 2022
Multiple Sclerosis in a downward, unpredictable spiral isn’t pretty. But then neither am I. And I guess I just have to live with both those facts. Hey ho. MS isn’t always progressive. But it often is. It doesn’t always progress fast. But it sometimes does. There’s very little you can do to predict your ongoing progress. No wonder that feeds into the anxiety that frequently comes hand in hand with actual symptoms. And right now I’m in the middle of a storm of change. Meh… Some posts inbound! Daily carer visits My latest significant ickiness to ‘give in’ to? Daily carer visits. Weekdays to put me to bed. Weekends to both haul me out of bed and then later […]
30 March 2021
One of the technical terms I use to describe MS damage to the central nervous system in my brain and spinal cord is ‘icky’. That covers everything off pretty well. My own sodding immune system is wading into the protective sheath around my nerves and leaving permanent scarring, hardening and damage. Not strategically or predictably. Totally randomly. My immune system ‘bomb runs’ show up on MRI scans like small blobs of cotton wool or some well-chomped, discarded chewing gum. Icky. Classics lesson for you: ‘Sclerosis’ comes from the Greek σκληρός sklērós, “hard”. (ie ‘hardening’, ‘scars’, ‘ewww’) Doubly icky is the knowledge that my actual brain is shrinking. ‘Brain atrophy’ is, I think, the proper term. Happens to us all as […]
3 December 2019
So, legions of adoring fans, I haven’t written for a while. ‘Lesions’ of adoring fans, if you know your MS stuff and like a bad pun. The complaints at my deafening silence have been flooding in. Not really. Am not sure anyone has noticed. Hey ho! I have lots of draft blogs which are nearly there, honest… Writing and thinking is therapy anyway, and probably stimulation for my foggy brain. ‘Cos that’s what it is. Foggy. Cloudy. Hazy. As if I were simultaneously a brain forecaster for Mark Webb and for UK weather. I can confidently predict more mist and storms to come. With rare but glorious clear spells. Look at me sat in a wheelchair and you guess, correctly, […]