chilterns ms centre

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

31 December 2020

Fundraise Bloody Fundraise!

Oops. My improbable plan was to offer up an alternative Queen’s Speech for Christmas Day. But clever friends (or Santa, depending on your age as you read this), bought me a bottle of Salted Caramel Tequila. They know the way to my heart and to my taste buds. First two shots, 9.30am. ‘Writing’ quickly burbled its way to foggy impossibility. “Cog fog!” (Cognitive Dysfunction), shout MSers. “Sozzled,” admits I… Instead I shall emulate all our glorious political and religious leaders and issue a New Year’s Message. That’ll show ‘em. ‘Fundraise, Bloody Fundraise!’ is my 2021 nag. If you are of a certain age or you like your 80’s music, you’ll get the rhyming plagiarism in the title from […]

20 February 2020

What has Disability Ever Done For me?

That was a poorly timed Monty Python joke of a title if you weren’t sure… RIP the spamtastic Terry Jones. And he’s not even in this picture. Oops. I so wish I wasn’t disabled. I wish to the depth of my spasms I didn’t have Multiple Sclerosis. It hurts on so many levels, it’s relentless and it is utterly, mind-bogglingly exhausting. But do I wish life were different? Nope. I am delightedly, delightfully, deliciously, dottily married. We have two stupendous children. A lovely extended family. I am knicker-droppingly‌ gorgeous. Obviously. If balding, ageing and sometimes smelly. What more could I want? (Crème brûlée more often possibly, if I am being picky?). I was prompted to think this through […]