carer
I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...
11 January 2023
We, the Multiple Sclerosis, disabled and wider D&I community do love complex words and explanations. ‘Intersectionality’. ‘Diversity, Equity and Inclusion’. ‘Disease Modifying Therapy’. ‘Toxic Positivity’. I’m gonna tackle the last one today. There’s a phrase used by lots of MSers (that’s people with Multiple Sclerosis). ‘MS Warrior’. I’m absolutely fine about people identifying with that, but I just don’t see myself there. I’ve done everything right in handling my MS. Straight onto a treatment as soon as it was offered. Exercise. Good sleep(ish!). Staying active professionally and socially. Decent diet with the odd naughty cake. Vats of water. Possibly too much Tequila. 😬 And yet I’m pretty ill with my MS. I have daily carers. I struggle to make a […]
15 May 2019
Taxi banter Not for the first time in my life, I had a chatty taxi driver this week. And not for the first time, the bloke was nice enough and curious about my disability – though in this case only using it as an intro to be able to talk about his arthritis. I don’t mind, honestly. We all have our challenges. And pain, or worse constant pain, always weighs heavy. And neither do I mind not talking MS. Am happy to explain, happy to put misconceptions wrong, happy above all to laugh at my condition and my frequent mishaps and adventures. But equally happy, nay happier, to listen and talk about other stuff! And not for the last time, […]
30 April 2019
I’m back! Have been dawdling with a new website to blog from and I’ve taken bloomin’ ages. I blame Multiple Sclerosis for the delay. Obviously. Planned to have it running for #MSAwarenessWeek. That’s just finished, curses! Or I could wait until #WorldMSDay. Too impatient! Here we go then. Today started, ummm, interestingly. Mrs W is away and my carer doesn’t arrive until 10am (Carers, that’s a good blog topic to plan for). So I needed to do the 8am school run. Luckily, after at least six months adrift and mostly housebound, I am hand-control driving again. That’s all down to my new-found addiction to Wheelchair Rugby. Lots of work on core and upper body strength. (Wheelchair Rugby, that’s a fun […]