Adrenaline

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
1 January 2023
A profile pic of me, a white middle-aged wheelchair user. Mouth wide open and a green Mohican. In one hand is a lit sparkler. In the other a half drunk glass of champagne. I’m wearing a nonsense load of silly clothes.

My New Year’s Evolutions

Time to utter the traditional refrain, “I’m not very good at New Year’s Resolutions.” Change hurts my MS’d up brain after all. But but but, if I want to continue living a fantabulous life, I need to make some changes to accommodate my progressive and progressing Multiple Sclerosis. 2022 was a toughie. Medical retirement from www.shift.ms  hit me like a long, slow slap round the chops. Three or four months of a total loss of sense of self. A hint of despair. A soupçon of misdirected regret. Oodles of deep, deep sighs. Silly really. I was staying stupidly busy with my family, my speaking engagements, my patient and disability advocacy, my writing, my nonsensing as an anti-fashion guru. Not to […]
14 October 2022
The sails of the tallship 'Tenacious' unfurled at night. Lit only by moonlight against the sea.

Briefly Escaping a Progressive Illness

So I know I’m lucky. I have a wonderful family and close friends. I made it to 53 before medical retirement and after an amazing career. I keep getting wonderful representation and speaking opportunities out of the blue. So, despite Kate Winslet *still* not having picked up the telephone, all in all I’m having a stonking time. But having an overwhelmingly shitty disease pretty shittily is shitty nonetheless. I’m proud to be disabled, proud of how I handle it. I just need a break from it every so often. Adrenaline JunkieOutside family and friendship fun, my general approach to escaping Multiple Sclerosis is to pursue ‘heavy nonsensing’. The scarier the better. Adrenaline rocks! With the help of organisations like Http://www.Sportability., […]