A good life (honestly!) with Multiple Sclerosis…

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
16 July 2019

A Glutton for Funishment

Oh dear. There was me thinking I had come up with the word ‘Funishment’ all on my own. I was wanting to describe my Tough Mudder/Wheelchair Rugby/Skydiving adrenaline fetish. And it turns out fetish is thoroughly appropriate. Funishment is apparently defined as ‘a pleasurable way of being punished, usually in a sexual way.’ Oh.     There was nothing sexual whatsoever about being manhandled like a sack of potatoes by a dozen guys and gals over, under and through 15 devious Tough Mudder obstacles. Especially on the multiple occasions I got a wedgie, or my ‘special pants’ were on display while being dragged over the line or a high wall.     Why exactly did I love it? Why do I […]
21 June 2019

Why I do stupid things…

Hmmm… That title could take this blog so many directions!   Option 1 Yes, Multiple Sclerosis makes me visibly disabled, tired, never far from a loo etc. It also affects my thinking. Cognitive Dysfunction they call it. The same faulty nerve signals affecting my legs (for example) directly impact my brain. I can’t process the world around me as fast as others. I can’t concentrate or focus for long. I forget things, especially short-term. I struggle to multi-task. [insert appropriate bloke joke]. On a bad MS day, I would certainly pass as stoopid. Nope, not talking about that today. Option 2 It’s a bugger, but my brain is also affected in other, subtler ways. (the long-suffering Mrs W would argue […]
12 June 2019

Volunteers to the South-West sir. Thousands of them!

OK, so my recent post missed Invisible Disability Awareness Week by a month. And this one is missing Volunteers Week by a few days. Fortunately I have the catch-all excuse, “I have Multiple Sclerosis”. It’s brilliant, I can blame anything on it. From dropped cups, forgotten names, through jumbled words, random spasms, people rammed with my funky wheelchair to nodding off and snoring, it’s MS… Oh golly, we’re so lucky… Fundraising I don’t know how long this blog is going to be, because all I really want to say is a huge thank you to volunteers everywhere! In August, twelve amazing, hardy souls are swimming from Portsmouth to the Isle of Wight to raise money for two wonderful charities,  https://shift.ms/ […]
4 June 2019
Invisible disability?

I’m in a wheelchair and I have an invisible disabilty

“Carpe Diem!” they shout, “Seize the Day!” “Yay,” we agree, “We’ll definitely make every day count!” A Grand Day Out. Or not. Except Multiple Sclerosis doesn’t quite let us work like that. It toys with us like a deranged cat with a weary mouse. We make thrilling plans – or even teensy plans – for tomorrow. We make resolutions. We have dreams and come up with crazy ideas. “This time it’s really gonna work,” we think, “I can’t let people down again.” And then, randomly, just as something starts to pan out and the coast looks clear, MS sidles up with a sly grin. “Sorry chum,” it smirks, “You’re staying in bed today. You’ve probably got enough energy for a […]