A good life (honestly!) with Multiple Sclerosis…

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
19 March 2021

Me and the President of the United States. And Multiple Sclerosis.

Once upon a time, in an era so far away it should be in black and white, I took no interest in US politics… Presidents would only waft across my consciousness when starting wars or teaching me the word ‘impeach’ by making a mess of a dress and an intern’s life… (younger readers: Google ‘Clinton’, ‘Lewinsky’, ‘I did not have sexual relations with that woman’. And please behave when you rule the world.) Then came a breath of fresh air and a brief, delicious taste of diversity in power with Barrack Obama. I got interested and started to vaguely pay attention.   I was even more excited when former fighter pilot President Whitmore played a key role in defeating a […]
21 February 2021

I’m not a freak show!

Look. I know I’m ‘different’. Isn’t everybody? I’m sure not many people aspire to be disabled, even though, over the years – I have come to be proud to be so. Prouder and happier still to have ‘achieved’ membership of an amazingly resilient and supportive community.  Not biased at all, but  https://shift.ms  is my fave place to hang, of course. I shout out for multiple sclerosis peeps, for everyone disabled, and have even spread my wobbly wings to talking up all things diversity. Neither am I a shrinking violet about it. As far as wheelchairs can be sexy, I have a funky, eye-catching  https://trekinetic.com/  one. It’s racing red and can do about four miles an hour. I like to think of it […]
22 January 2021

Making Grand Plans When Multiple Sclerosis Has Other Ideas

Back in the Noughties, I spent a happy three years or so working for the ‘leading premium health and fitness group’, or something like that. Fluffy marketing and pr-speak for David Lloyd Leisure. Thoroughly recommend: https://www.davidlloyd.co.uk/  . It was very much a lifestyle job. If you had a morning meeting, you could bet your bottom dollar – and indeed any excess fat on your bottom – that you would run into other attendees prior to that meeting on a treadmill, or in the pool. Or dosing up on a Full English Breakfast as a reward for all the worthy calorie-crunching. If the meeting was in the afternoon, the same exercise logic applied. But replace ‘Full English’ with ‘Pint of Beer […]
31 December 2020

Fundraise Bloody Fundraise!

Oops. My improbable plan was to offer up an alternative Queen’s Speech for Christmas Day. But clever friends (or Santa, depending on your age as you read this), bought me a bottle of Salted Caramel Tequila. They know the way to my heart and to my taste buds. First two shots, 9.30am. ‘Writing’ quickly burbled its way to foggy impossibility. “Cog fog!” (Cognitive Dysfunction), shout MSers. “Sozzled,” admits I…     Instead I shall emulate all our glorious political and religious leaders and issue a New Year’s Message. That’ll show ‘em. ‘Fundraise, Bloody Fundraise!’ is my 2021 nag. If you are of a certain age or you like your 80’s music, you’ll get the rhyming plagiarism in the title from […]