A good life (honestly!) with Multiple Sclerosis…

 

I work (for now), I love, I live, I have fun. Just with wheelchairs and drugs and spasms and stuff...

 
21 February 2021

I’m not a freak show!

Look. I know I’m ‘different’. Isn’t everybody? I’m sure not many people aspire to be disabled, even though, over the years – I have come to be proud to be so. Prouder and happier still to have ‘achieved’ membership of an amazingly resilient and supportive community.  Not biased at all, but  https://shift.ms  is my fave place to hang, of course. I shout out for multiple sclerosis peeps, for everyone disabled, and have even spread my wobbly wings to talking up all things diversity. Neither am I a shrinking violet about it. As far as wheelchairs can be sexy, I have a funky, eye-catching  https://trekinetic.com/  one. It’s racing red and can do about four miles an hour. I like to think of it […]
22 January 2021

Making Grand Plans When Multiple Sclerosis Has Other Ideas

Back in the Noughties, I spent a happy three years or so working for the ‘leading premium health and fitness group’, or something like that. Fluffy marketing and pr-speak for David Lloyd Leisure. Thoroughly recommend: https://www.davidlloyd.co.uk/  . It was very much a lifestyle job. If you had a morning meeting, you could bet your bottom dollar – and indeed any excess fat on your bottom – that you would run into other attendees prior to that meeting on a treadmill, or in the pool. Or dosing up on a Full English Breakfast as a reward for all the worthy calorie-crunching. If the meeting was in the afternoon, the same exercise logic applied. But replace ‘Full English’ with ‘Pint of Beer […]
31 December 2020

Fundraise Bloody Fundraise!

Oops. My improbable plan was to offer up an alternative Queen’s Speech for Christmas Day. But clever friends (or Santa, depending on your age as you read this), bought me a bottle of Salted Caramel Tequila. They know the way to my heart and to my taste buds. First two shots, 9.30am. ‘Writing’ quickly burbled its way to foggy impossibility. “Cog fog!” (Cognitive Dysfunction), shout MSers. “Sozzled,” admits I…     Instead I shall emulate all our glorious political and religious leaders and issue a New Year’s Message. That’ll show ‘em. ‘Fundraise, Bloody Fundraise!’ is my 2021 nag. If you are of a certain age or you like your 80’s music, you’ll get the rhyming plagiarism in the title from […]
9 December 2020

I still shoot from the hip. But now I wee from the ankle. Bladder news.

Every so often – and somewhat inevitably with what is a progressive disease – something comes along to knock you backwards and sideways and to the floor. I spend most of my Multiple Sclerosis life comfortably in an ‘acceptance’ phase. I laugh, I love, I have silly adventures. I eat cake. I hang around my wife like a puppy, hoping against hope for a sloppy kiss. Mwah! But right now I’m back to ‘floundering‘. Is that an official grief stage? Well that’s where I am in any case, and I’m feeling a little beaten up. I am now a rather bemused operator of a ‘suprapubic catheter’. I’ll tell you a story to see if that cheers me up. This fable […]